The Celiac Disease Program at Boston Children’s Hospital is working on a project to evaluate the effect of the COVID-19 pandemic on food insecurity in families with a household member who is following a gluten-free diet. We hope that this work will help us understand the ability of families to access gluten-free foods prior to and during the COVID-19 pandemic.

This study will enroll approximately 700 families with a household member who is following a gluten-free diet. We will also ask that each family with a household member who is gluten-free refer a peer family that does not follow a gluten-free diet to participate in the study so that we have a peer control group to compare our results.

What will your participation look like if you choose to participate?

We will ask your family to complete a short digital survey that asks questions about your ability to access food prior to and during the COVID-19 pandemic. You will also be asked basic demographic information questions, as well as about the availability of gluten-free products during the COVID-19 pandemic.

Additionally, through the survey, we will ask you to provide contact information for a peer family that does not follow a gluten-free diet to serve as a control group. This will help us compare what we find amongst gluten-free families to the general population. The peer family that you refer will be asked to complete a modified survey that asks about their experience accessing food prior to and during the COVID-19 pandemic. It would be great if you could let the peer family know to expect the survey in their email inbox.

This study will ask you to enter demographic information. The only personal identifiable information collected will be your ZIP code. Every precaution will be taken to secure participants’ information to ensure confidentiality.

Participation in this study is voluntary and your decision will not affect the care that you receive. Please contact Vanessa Weisbrod at vanessa.weisbrod@childrens.harvard.edu with questions about this study. If you have questions about your rights participating in research or would like to speak to someone independent of the research team, then please contact the Institutional Review Board at 617-355-7052.

If you agree and consent to participate, then please click on the "Submit" button below to start the survey.

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